Describing Pain to a Doctor
blog
6/26/2024 10:00:47
Showing 4,414 of 4,414 items
Showing 4,414 of 4,414 items
Dr. Janine Krefts’ 6 Benefits of Polyvagal Therapy for Reducing Stress and Trauma
article
6/26/2024 10:00:22
K12 Digital Accessibility – Knowbility
resource
6/26/2024 9:59:45
Ehlers Danlos Syndrome: What Does it Mean to You? – Holistic Health and hEDS
blog
6/26/2024 9:56:22
The Provider Primers Series for Helping Doctors Understand Mast Cell Disorders - Mast Attack
resource
6/26/2024 9:40:36
The MastAttack: The Layperson's Guide to Understanding Mast Cell Diseases - Mast Attack
resource
6/26/2024 9:39:46
Mast cell disease fact sheet - Mast Attack
article
6/26/2024 9:39:14
Mast Attack by Lisa Klimas, Author
resource
6/26/2024 9:38:34
Fatigue in wheelchair users - Loopwheels
article
6/26/2024 9:37:11
MUSC studying device that could aid women with nerve disease | Health | postandcourier.com
news
6/25/2024 11:28:39
MUSC studying therapy for syndrome similar to long COVID | Health | postandcourier.com
article
6/25/2024 1:19:06
What vitamins are good for hypermobile joints?
article
6/25/2024 1:18:25
Congenital and Acquired Chiari Syndrome - PubMed
research
6/24/2024 22:28:37
(028) IDENTIFYING A CORRELATION BETWEEN EHLERS DANLOS SYNDROME (HYPERMOBILITY TYPE) AND GENITOPELVIC PAIN IN WOMEN | The Journal of Sexual Medicine | Oxford Academic
research
6/21/2024 23:00:16
Solace | Talk To A Healthcare Advocate
resource
6/20/2024 23:43:18
Video Library – Bobby Jones CSF
nonprofit
6/20/2024 2:16:04
Dr. Lawrence Afrin on MCAS Diagnostic Criteria “Consensus-2”
podcast
6/20/2024 0:53:22
Neuroendocrine, Autonomic and Metabolic Challenges in Hypermobile Ehlers-Danlos Syndrome: A Case Study on Hypoglycemia in a patient with Craniocervical Instability. | Medical Research Archives
research
6/20/2024 0:37:09
Association of Psychological Resilience, Cognitive Reserve, and Brain Reserve with Post-Concussive Symptoms in Children with Mild Traumatic Brain Injury and Orthopedic Injury: An A-CAP Study | Journal of Neurotrauma
research
6/20/2024 0:21:10
Medical PTSD and Chronic Illness: Root Causes and Strategies for Survival – Holistic Health and hEDS
blog
6/19/2024 7:42:33
Hypermobile Ehlers-Danlos Syndrome - GeneReviews® - NCBI Bookshelf
research
6/19/2024 7:35:26
Mental Health Awareness | RareDisease.net
blog
6/19/2024 2:17:28
4 Tips for Communicating With Loved Ones | RareDisease.net
blog
6/19/2024 2:15:48
I'd love to push my daughter on a swing, but I can't without dislocating my joints, says mother suffering with rare 'very bendy' joints condition | Daily Mail Online
patient story
6/19/2024 2:08:34
REPLAYS: Neurodiversity Pride Day | June 16 2024 | ND Pride 2024
event
6/17/2024 23:52:59
Anterior scleral thickness in Marfan syndrome: A quantitative analysis - Alluyn - Acta Ophthalmologica - Wiley Online Library
research
6/17/2024 23:51:05
The LDN (Low Dose Naltrexone) Guides for Patients and Providers from LDN Research Trust - The Low Dose Naltrexone Charity
resource
6/17/2024 23:48:15
Can Chemical Agents and Pollens Induce Food Allergies?
research
6/17/2024 23:04:40
Social media use by patients with hypermobile Ehlers–Danlos syndrome - Halverson - 2024 - Molecular Genetics
research
6/17/2024 23:00:25
Health care issues of hypochondria, as viewed by a hypochondriac
article
6/17/2024 22:58:21
The Ehlers-Danlos Society Community Feedback Survey Form
survey
6/17/2024 22:57:30
10 Best Foods High in Vitamin D - GoodRx
article
6/17/2024 22:52:46
Management of childbearing with hypermobile Ehlers-Danlos syndrome and hypermobility spectrum disorders: A scoping review and expert co-creation of evidence-based clinical guidelines - PMC
resource
6/17/2024 4:50:58
No justification for tying hypermobility, EDS to unexplained fractures: Study
blog
6/16/2024 6:55:21
AB1425 MEASUREMENT OF PATIENTS’ FUNCTIONAL INDEPENDENCE AND DETERMINANTS OF SEVERITY IN PATIENTS SUFFERING FROM JOINT HYPERMOBILITY SYNDROMES | Annals of the Rheumatic Diseases
research
6/16/2024 6:52:30
AB0392 THE RELEVANCE OF JOINT INSTABILITY TO THE HYPERMOBILE EHLERS DANLOS SYNDROME PHENOTYPE | Annals of the Rheumatic Diseases
research
6/16/2024 6:51:00
POS0584 PROSPECTIVE LONG-TERM STUDY OF THE EFFICACY OF COMPRESSION GARMENTS IN THE TREATMENT OF HYPERMOBILE EHLERS DANLOS SYNDROMES AND HYPERMOBILITY SPECTRUM DISORDERS | Annals of the Rheumatic Diseases
research
6/16/2024 6:45:36
PATIENT STUDY CALL FOR PARTICIPANTS: Evaluation of COVID19 experiences in patient with Ehlers-Danlos Syndromes 15 years
data call
6/15/2024 4:12:49
The Long and Short of Long-Term Care - Education Resource Library
resource
6/15/2024 3:56:27
The Neuroscience of Grief: How We Learn From Love and Loss - YouTube
video
6/15/2024 3:45:02
Frontiers | Mast cell degranulation and bradykinin-induced angioedema - searching for the missing link
research
6/15/2024 3:37:43
Prevalence of depression and anxiety in women with pelvic floor dysfunctions: A systematic review and meta‐analysis - Peinado Molina - International Journal of Gynecology
research
6/15/2024 3:28:45
Association Between Striae and Pelvic Organ Prolapse in Women: A Systematic Review and Meta-Analysis | International Urogynecology Journal
research
6/15/2024 3:28:17
HYPERMOBILITY SPECTRUM DISORDERS IN SEVERE CHRONIC PAIN SYNDROMES: EVALUATING THE PERFORMANCE OF BEIGHTON SCORE VERSUS CLINICAL ASSESSMENT | Annals of the Rheumatic Diseases
research
6/14/2024 0:54:13
LDN Video Interviews and Presentations (Low Dose Naltrexone) LDN Research Trust - The Low Dose Naltrexone Charity
patient story
6/13/2024 10:22:40
Impact of COVID-19 infection on baseline autonomic symptoms in patients with preexisting postural tachycardia syndrome and orthostatic intolerance: A retrospective study - ScienceDirect
research
6/13/2024 10:18:33
Pushing for an NIH office for post-infection chronic illness | STAT
article
6/13/2024 10:18:19
Spoonie & Chronic Illness Podcasts
podcast
6/13/2024 10:05:24
EDS Care-e-oke Playlist 2024 | Spotify
playlist
6/13/2024 10:03:24
Diagnosed prevalence of Ehlers-Danlos syndrome and hypermobility spectrum disorder in Wales, UK: a national electronic cohort study and case-control comparison - PubMed
research
6/12/2024 22:31:11
Describing Pain to a Doctor
blog
6/26/2024 10:00:47
Dr. Janine Krefts’ 6 Benefits of Polyvagal Therapy for Reducing Stress and Trauma
article
6/26/2024 10:00:22
K12 Digital Accessibility – Knowbility
resource
6/26/2024 9:59:45
Ehlers Danlos Syndrome: What Does it Mean to You? – Holistic Health and hEDS
blog
6/26/2024 9:56:22
The Provider Primers Series for Helping Doctors Understand Mast Cell Disorders - Mast Attack
resource
6/26/2024 9:40:36
The MastAttack: The Layperson's Guide to Understanding Mast Cell Diseases - Mast Attack
resource
6/26/2024 9:39:46
Mast cell disease fact sheet - Mast Attack
article
6/26/2024 9:39:14
Mast Attack by Lisa Klimas, Author
resource
6/26/2024 9:38:34
Fatigue in wheelchair users - Loopwheels
article
6/26/2024 9:37:11
MUSC studying device that could aid women with nerve disease | Health | postandcourier.com
news
6/25/2024 11:28:39
MUSC studying therapy for syndrome similar to long COVID | Health | postandcourier.com
article
6/25/2024 1:19:06
What vitamins are good for hypermobile joints?
article
6/25/2024 1:18:25
Congenital and Acquired Chiari Syndrome - PubMed
research
6/24/2024 22:28:37
(028) IDENTIFYING A CORRELATION BETWEEN EHLERS DANLOS SYNDROME (HYPERMOBILITY TYPE) AND GENITOPELVIC PAIN IN WOMEN | The Journal of Sexual Medicine | Oxford Academic
research
6/21/2024 23:00:16
Solace | Talk To A Healthcare Advocate
resource
6/20/2024 23:43:18
Video Library – Bobby Jones CSF
nonprofit
6/20/2024 2:16:04
Dr. Lawrence Afrin on MCAS Diagnostic Criteria “Consensus-2”
podcast
6/20/2024 0:53:22
Neuroendocrine, Autonomic and Metabolic Challenges in Hypermobile Ehlers-Danlos Syndrome: A Case Study on Hypoglycemia in a patient with Craniocervical Instability. | Medical Research Archives
research
6/20/2024 0:37:09
Association of Psychological Resilience, Cognitive Reserve, and Brain Reserve with Post-Concussive Symptoms in Children with Mild Traumatic Brain Injury and Orthopedic Injury: An A-CAP Study | Journal of Neurotrauma
research
6/20/2024 0:21:10
Medical PTSD and Chronic Illness: Root Causes and Strategies for Survival – Holistic Health and hEDS
blog
6/19/2024 7:42:33
Hypermobile Ehlers-Danlos Syndrome - GeneReviews® - NCBI Bookshelf
research
6/19/2024 7:35:26
Mental Health Awareness | RareDisease.net
blog
6/19/2024 2:17:28
4 Tips for Communicating With Loved Ones | RareDisease.net
blog
6/19/2024 2:15:48
I'd love to push my daughter on a swing, but I can't without dislocating my joints, says mother suffering with rare 'very bendy' joints condition | Daily Mail Online
patient story
6/19/2024 2:08:34
REPLAYS: Neurodiversity Pride Day | June 16 2024 | ND Pride 2024
event
6/17/2024 23:52:59
Anterior scleral thickness in Marfan syndrome: A quantitative analysis - Alluyn - Acta Ophthalmologica - Wiley Online Library
research
6/17/2024 23:51:05
The LDN (Low Dose Naltrexone) Guides for Patients and Providers from LDN Research Trust - The Low Dose Naltrexone Charity
resource
6/17/2024 23:48:15
Can Chemical Agents and Pollens Induce Food Allergies?
research
6/17/2024 23:04:40
Social media use by patients with hypermobile Ehlers–Danlos syndrome - Halverson - 2024 - Molecular Genetics
research
6/17/2024 23:00:25
Health care issues of hypochondria, as viewed by a hypochondriac
article
6/17/2024 22:58:21
The Ehlers-Danlos Society Community Feedback Survey Form
survey
6/17/2024 22:57:30
10 Best Foods High in Vitamin D - GoodRx
article
6/17/2024 22:52:46
Management of childbearing with hypermobile Ehlers-Danlos syndrome and hypermobility spectrum disorders: A scoping review and expert co-creation of evidence-based clinical guidelines - PMC
resource
6/17/2024 4:50:58
No justification for tying hypermobility, EDS to unexplained fractures: Study
blog
6/16/2024 6:55:21
AB1425 MEASUREMENT OF PATIENTS’ FUNCTIONAL INDEPENDENCE AND DETERMINANTS OF SEVERITY IN PATIENTS SUFFERING FROM JOINT HYPERMOBILITY SYNDROMES | Annals of the Rheumatic Diseases
research
6/16/2024 6:52:30
AB0392 THE RELEVANCE OF JOINT INSTABILITY TO THE HYPERMOBILE EHLERS DANLOS SYNDROME PHENOTYPE | Annals of the Rheumatic Diseases
research
6/16/2024 6:51:00
POS0584 PROSPECTIVE LONG-TERM STUDY OF THE EFFICACY OF COMPRESSION GARMENTS IN THE TREATMENT OF HYPERMOBILE EHLERS DANLOS SYNDROMES AND HYPERMOBILITY SPECTRUM DISORDERS | Annals of the Rheumatic Diseases
research
6/16/2024 6:45:36
PATIENT STUDY CALL FOR PARTICIPANTS: Evaluation of COVID19 experiences in patient with Ehlers-Danlos Syndromes 15 years
data call
6/15/2024 4:12:49
The Long and Short of Long-Term Care - Education Resource Library
resource
6/15/2024 3:56:27
The Neuroscience of Grief: How We Learn From Love and Loss - YouTube
video
6/15/2024 3:45:02
Frontiers | Mast cell degranulation and bradykinin-induced angioedema - searching for the missing link
research
6/15/2024 3:37:43
Prevalence of depression and anxiety in women with pelvic floor dysfunctions: A systematic review and meta‐analysis - Peinado Molina - International Journal of Gynecology
research
6/15/2024 3:28:45
Association Between Striae and Pelvic Organ Prolapse in Women: A Systematic Review and Meta-Analysis | International Urogynecology Journal
research
6/15/2024 3:28:17
HYPERMOBILITY SPECTRUM DISORDERS IN SEVERE CHRONIC PAIN SYNDROMES: EVALUATING THE PERFORMANCE OF BEIGHTON SCORE VERSUS CLINICAL ASSESSMENT | Annals of the Rheumatic Diseases
research
6/14/2024 0:54:13
LDN Video Interviews and Presentations (Low Dose Naltrexone) LDN Research Trust - The Low Dose Naltrexone Charity
patient story
6/13/2024 10:22:40
Impact of COVID-19 infection on baseline autonomic symptoms in patients with preexisting postural tachycardia syndrome and orthostatic intolerance: A retrospective study - ScienceDirect
research
6/13/2024 10:18:33
Pushing for an NIH office for post-infection chronic illness | STAT
article
6/13/2024 10:18:19
Spoonie & Chronic Illness Podcasts
podcast
6/13/2024 10:05:24
EDS Care-e-oke Playlist 2024 | Spotify
playlist
6/13/2024 10:03:24
Diagnosed prevalence of Ehlers-Danlos syndrome and hypermobility spectrum disorder in Wales, UK: a national electronic cohort study and case-control comparison - PubMed
research
6/12/2024 22:31:11