How I Reconcile My Chronic Illness and Disability Identities
patient story
8/25/2022 4:20:38
Showing 4,414 of 4,414 items
Showing 4,414 of 4,414 items
Hugging Hurts Me Because of Ehlers-Danlos Syndrome
patient story
8/25/2022 4:20:17
Advice for Living With Ehlers-Danlos Syndrome
patient story
8/25/2022 4:19:55
Pressure Points To Help You Fall Asleep Quickly
article
8/25/2022 4:19:16
Systemic manifestations of Ehlers-Danlos syndrome - PMC
research
8/25/2022 4:18:51
Cureus | Joint Hypermobility as a Potential Indicator of Marfan Syndrome and Ehlers-Danlos Syndrome
research
8/25/2022 4:18:27
Interview with Dr. Norris on finding the genetic cause(s) for hypermobile EDS and much more - EDSAwareness.com
video
8/25/2022 4:16:50
You Don't Look Sick - a series telling the stories of those with invisible illness and disabilities
article
8/25/2022 4:16:27
April Torres on her EDS journey, the mental toll it took on her, and her book ‘God is Hilarious: My Rescue Story’ - EDSAwareness.com
patient story
8/25/2022 4:15:50
Underlying Causes of POTS | Standing Up To POTS
nonprofit
8/25/2022 4:14:40
Central Role of Mast Cells in Mastocytosis, Hereditary α-Tryptasemia, Mast Cell Activation Syndrome, Urticaria, and Angioedema - European Medical Journal
research
8/25/2022 4:09:22
The Neurodivergent Woman on Apple Podcasts
podcast
8/25/2022 4:08:05
High school senior helps raise funds for 'invisible' diseases | From the Editor | Thetribune | gazette.com
patient story
8/25/2022 4:05:23
Conditions that Affect TMJ Disorder and Other Comorbidities | Sleep
article
8/25/2022 4:04:47
The Underrecognized Conditions of Hypermobile Ehlers–Danlos Syndrome and Hypermobility Spectrum Disorders in Women - ScienceDirect
research
8/25/2022 4:04:26
Hypermobility Ehlers Danlos Syndrome and when a sneeze dislocates a rib. – Holly A ( I Thought You Cared )
patient story
8/25/2022 4:02:54
Phenotype of COL3A1/COL5A2 deletion patients - PubMed
research
8/25/2022 4:01:54
Climate Change Is A Double Blow For People With Disabilities - Health Policy Watch
article
8/25/2022 4:00:42
Having a baby made me incontinent': The hidden pelvic floor problems women need to know about
blog
8/25/2022 4:00:06
I'm Disabled and Proud No Matter What Society Thinks | Well Good
patient story
8/25/2022 3:58:49
Joint hypermobility: emerging disease or illness behaviour? | RCP Journals
research
8/25/2022 3:58:20
Exercise beliefs and behaviours of individuals with Joint Hypermobility syndrome/Ehlers-Danlos syndrome - hypermobility type - PubMed
research
8/25/2022 3:56:36
7 Facts About Chronic and Invisible Illness | Crystal Jackson | NewsBreak Original
article
8/25/2022 3:56:05
Two disabled adventurers set to conquer 3,560ft Snowdon
patient story
8/25/2022 3:54:56
Our Evolving Understanding of ME/CFS - PMC
research
8/25/2022 3:54:06
Cureus | Perioperative Management of Ehlers-Danlos Type III Syndrome Associated With Postural Orthostatic Tachycardia in Patients Undergoing General Anesthesia
research
8/25/2022 3:53:35
Not your ’Hollywood’ homeless - Central Queensland Today
patient story
8/25/2022 3:52:23
Interview with Aunia Kahn
patient story
8/25/2022 3:51:33
What Keeps Gigi Robinson Up At Night? | Success Story Podcast - YouTube
video
8/25/2022 3:50:26
Evaluating perinatal and neonatal outcomes among children with vascular Ehlers-Danlos syndrome - PubMed
research
8/25/2022 3:47:53
Trying to balance school, fitness, youtube and my health | realistic School day in my life 💖 - YouTube
video
8/25/2022 3:43:40
ACMG SF v3.0 list for reporting of secondary findings in clinical exome and genome sequencing: a policy statement of the American College of Medical Genetics and Genomics (ACMG) - Genetics in Medicine
research
8/25/2022 3:43:11
Comparative Risks of Initial Aortic Events Associated With Genetic Thoracic Aortic Disease | Journal of the American College of Cardiology
research
8/25/2022 3:42:44
ENRICHMENT OF PATIENTS WITH EHLERS DANLOS SYNDROME IN IDIOPA... : Clinical and Translational Gastroenterology
research
8/25/2022 3:41:52
Ehlers-Danlos Syndrome: What You Don’t See Behind My ‘I'm OK’ Mask
blog
8/25/2022 3:39:34
The Rest Room | Natasha Lipman | Substack
resource
8/21/2022 2:53:08
UnitedHealth to offer some drugs, including insulin, at no cost share in 2023 | Healthcare Dive
article
7/16/2022 0:04:56
Sleep Expert Dr. Julia Kogan Reveals The Bedtime Routine That Guarantees A Great Night's Rest - Exclusive
article
7/15/2022 2:21:30
Best and Worst Types of Alcohol for People With Migraine - Migraine Strong
article
7/15/2022 2:09:18
Relaxed methadone rules appear safe, researchers find - STAT
article
7/15/2022 1:33:43
PregSource: Using input from pregnant people to uncover the secrets of pregnancy | NIH MedlinePlus Magazine
article
7/15/2022 1:30:17
Navigating the Ambiguous Losses That Accompany Caregiving - Healthy Aging®
article
7/14/2022 22:10:48
Tracking state abortion bans in the US | Healthcare Dive
resource
7/13/2022 20:59:43
Does Sleep Apnea Cause Weight Gain?
article
7/13/2022 20:32:16
If Your Pee Looks Or Smells Like This, It's Time To See A Doctor | HuffPost Life
article
7/13/2022 20:31:28
Five Wishes – Aging with Dignity
article
7/13/2022 20:30:00
Advance Care Planning Tools - Honoring Choices Virginia – Advance Care Planning to Support Your Health Care Decision-Making
resource
7/13/2022 20:27:52
3 Science-Backed Links Between Balance and Longevity | Well Good
article
7/13/2022 6:32:50
EDS Study
research
7/13/2022 6:32:27
What's Heat Intolerance? An Explanation | Kate the (Almost) Great
blog
7/13/2022 6:31:02
How I Reconcile My Chronic Illness and Disability Identities
patient story
8/25/2022 4:20:38
Hugging Hurts Me Because of Ehlers-Danlos Syndrome
patient story
8/25/2022 4:20:17
Advice for Living With Ehlers-Danlos Syndrome
patient story
8/25/2022 4:19:55
Pressure Points To Help You Fall Asleep Quickly
article
8/25/2022 4:19:16
Systemic manifestations of Ehlers-Danlos syndrome - PMC
research
8/25/2022 4:18:51
Cureus | Joint Hypermobility as a Potential Indicator of Marfan Syndrome and Ehlers-Danlos Syndrome
research
8/25/2022 4:18:27
Interview with Dr. Norris on finding the genetic cause(s) for hypermobile EDS and much more - EDSAwareness.com
video
8/25/2022 4:16:50
You Don't Look Sick - a series telling the stories of those with invisible illness and disabilities
article
8/25/2022 4:16:27
April Torres on her EDS journey, the mental toll it took on her, and her book ‘God is Hilarious: My Rescue Story’ - EDSAwareness.com
patient story
8/25/2022 4:15:50
Underlying Causes of POTS | Standing Up To POTS
nonprofit
8/25/2022 4:14:40
Central Role of Mast Cells in Mastocytosis, Hereditary α-Tryptasemia, Mast Cell Activation Syndrome, Urticaria, and Angioedema - European Medical Journal
research
8/25/2022 4:09:22
The Neurodivergent Woman on Apple Podcasts
podcast
8/25/2022 4:08:05
High school senior helps raise funds for 'invisible' diseases | From the Editor | Thetribune | gazette.com
patient story
8/25/2022 4:05:23
Conditions that Affect TMJ Disorder and Other Comorbidities | Sleep
article
8/25/2022 4:04:47
The Underrecognized Conditions of Hypermobile Ehlers–Danlos Syndrome and Hypermobility Spectrum Disorders in Women - ScienceDirect
research
8/25/2022 4:04:26
Hypermobility Ehlers Danlos Syndrome and when a sneeze dislocates a rib. – Holly A ( I Thought You Cared )
patient story
8/25/2022 4:02:54
Phenotype of COL3A1/COL5A2 deletion patients - PubMed
research
8/25/2022 4:01:54
Climate Change Is A Double Blow For People With Disabilities - Health Policy Watch
article
8/25/2022 4:00:42
Having a baby made me incontinent': The hidden pelvic floor problems women need to know about
blog
8/25/2022 4:00:06
I'm Disabled and Proud No Matter What Society Thinks | Well Good
patient story
8/25/2022 3:58:49
Joint hypermobility: emerging disease or illness behaviour? | RCP Journals
research
8/25/2022 3:58:20
Exercise beliefs and behaviours of individuals with Joint Hypermobility syndrome/Ehlers-Danlos syndrome - hypermobility type - PubMed
research
8/25/2022 3:56:36
7 Facts About Chronic and Invisible Illness | Crystal Jackson | NewsBreak Original
article
8/25/2022 3:56:05
Two disabled adventurers set to conquer 3,560ft Snowdon
patient story
8/25/2022 3:54:56
Our Evolving Understanding of ME/CFS - PMC
research
8/25/2022 3:54:06
Cureus | Perioperative Management of Ehlers-Danlos Type III Syndrome Associated With Postural Orthostatic Tachycardia in Patients Undergoing General Anesthesia
research
8/25/2022 3:53:35
Not your ’Hollywood’ homeless - Central Queensland Today
patient story
8/25/2022 3:52:23
Interview with Aunia Kahn
patient story
8/25/2022 3:51:33
What Keeps Gigi Robinson Up At Night? | Success Story Podcast - YouTube
video
8/25/2022 3:50:26
Evaluating perinatal and neonatal outcomes among children with vascular Ehlers-Danlos syndrome - PubMed
research
8/25/2022 3:47:53
Trying to balance school, fitness, youtube and my health | realistic School day in my life 💖 - YouTube
video
8/25/2022 3:43:40
ACMG SF v3.0 list for reporting of secondary findings in clinical exome and genome sequencing: a policy statement of the American College of Medical Genetics and Genomics (ACMG) - Genetics in Medicine
research
8/25/2022 3:43:11
Comparative Risks of Initial Aortic Events Associated With Genetic Thoracic Aortic Disease | Journal of the American College of Cardiology
research
8/25/2022 3:42:44
ENRICHMENT OF PATIENTS WITH EHLERS DANLOS SYNDROME IN IDIOPA... : Clinical and Translational Gastroenterology
research
8/25/2022 3:41:52
Ehlers-Danlos Syndrome: What You Don’t See Behind My ‘I'm OK’ Mask
blog
8/25/2022 3:39:34
The Rest Room | Natasha Lipman | Substack
resource
8/21/2022 2:53:08
UnitedHealth to offer some drugs, including insulin, at no cost share in 2023 | Healthcare Dive
article
7/16/2022 0:04:56
Sleep Expert Dr. Julia Kogan Reveals The Bedtime Routine That Guarantees A Great Night's Rest - Exclusive
article
7/15/2022 2:21:30
Best and Worst Types of Alcohol for People With Migraine - Migraine Strong
article
7/15/2022 2:09:18
Relaxed methadone rules appear safe, researchers find - STAT
article
7/15/2022 1:33:43
PregSource: Using input from pregnant people to uncover the secrets of pregnancy | NIH MedlinePlus Magazine
article
7/15/2022 1:30:17
Navigating the Ambiguous Losses That Accompany Caregiving - Healthy Aging®
article
7/14/2022 22:10:48
Tracking state abortion bans in the US | Healthcare Dive
resource
7/13/2022 20:59:43
Does Sleep Apnea Cause Weight Gain?
article
7/13/2022 20:32:16
If Your Pee Looks Or Smells Like This, It's Time To See A Doctor | HuffPost Life
article
7/13/2022 20:31:28
Five Wishes – Aging with Dignity
article
7/13/2022 20:30:00
Advance Care Planning Tools - Honoring Choices Virginia – Advance Care Planning to Support Your Health Care Decision-Making
resource
7/13/2022 20:27:52
3 Science-Backed Links Between Balance and Longevity | Well Good
article
7/13/2022 6:32:50
EDS Study
research
7/13/2022 6:32:27
What's Heat Intolerance? An Explanation | Kate the (Almost) Great
blog
7/13/2022 6:31:02