They’ve been BITTEN: reports of institutional and provider betrayal and links with Ehlers-Danlos Syndrome patients’ current symptoms, unmet needs and healthcare expectations - Jennifer Langhinrichsen-Rohling, Chrystal L. Lewis, Sean McCabe, Emma C. Lathan, Gabrielle A. Agnew, Candice N. Selwyn, Margaret E. Gigler, 2021
https://journals.sagepub.com/doi/full/10.1177/26330040211022033?s=03